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External support for chronically ill people

Export Indicator

Percentage of adults aged 18–59 years who have been chronically ill for 3 or more months in the past 12 months whose households received, free of user charges, basic external support in caring for chronically ill people, including health, psychological
What it measures

This indicator attempts to quantify the extent of support services free of user charges to households with chronically ill people.

Rationale
Numerator

Number of people 18–59 years old in households who have been ill for 3 or more of the past 12 months who reside in households that received some or all of the following basic support in the past 30 days preceding the questionnaire:
• health care support at least once a month while ill;
• emotional support in the past 30 days;
• social support, including material support, in the past 30 days; and
• all three types of support in the past 30 days.
Adults 18–59 years old who were ill for 3 or more months before dying in the past 12 months should also be included.
 

Denominator

All adults 18–59 years old who were ill for 3 or more months during the past 12 months, including those ill for 3 or more months before death.

Calculation
Method of measurement

The following methods are recommended. 
 • A population-based household survey can be used in high-prevalence settings. As part of a household survey, household rosters can be used to identify all eligible chronically ill people 15–59 years old. For each household with a chronically ill member, a series of questions is asked about the types and frequency of support received and primary source of the help.
• A special study: the household survey tool may be used in low-prevalence settings or targeted populations with similar but adapted methods sampling networks of people living with HIV/AIDS and/or recipients of services from care and support programmes.
Data should be analysed and reported by gender and age categories when sample size allows (15–24, 25–39 and 40–59 years).
PEPFAR Guide adds: Each component on type of support will also be reported on separately, i.e., percentage whose households received medical support, percentage whose households received emotional support, and so on.

Measurement frequency

Every 2-4 years

Disaggregation

Age group: 15 years - 24 years, 25 years - 39 years, 40 years - 59 years

Condom type: N/A

Education: N/A

Gender: Male, Female

Geographic location: N/A

HIV status: N/A

Pregnancy status: N/A

Sector: N/A

Service Type: N/A

Target: N/A

Time period: N/A

Type of orphan: N/A

Type/Timing of testing: N/A

Vulnerability status: N/A

Explanation of the numerator
Explanation of the denominator
Strengths and weaknesses

Household-based samples of chronically ill people are not nationally representative of all chronically ill people because they exclude those who are hospitalized, institutionalized or homeless. As a result, the proportion of the population “missed” varies.
 

Further information